International Rare Disease Day: a day to remind us that every journey counts
International
In Luxembourg, ALAN works alongside people affected by rare diseases, providing them with guidance, information and support to help them improve their quality of life.
Because these diseases often require the intervention of numerous specialists, coordinating care becomes essential. This is where the Electronic Healthcare Record (Dossier de Soins Partagé - DSP) makes all the difference: it allows authorised healthcare professionals to quickly access essential information.
By activating their eSanté account and using the DSP, patients and professionals can work together to provide more consistent, responsive and patient‑centred care.
Find out more about the DSP here.
Learn more about activating your eSanté account here.
Listen to the interview with Daniel Theisen, Director of ALAN, broadcast on Radio 100.7 as part of this international day.